He has baby blue eyes to melt your heart and a laugh that brings a smile to anyone who hears it. But Jaxon Buell is one of the strongest little one-year-olds you will ever meet. And his story is making headlines around the world.
Come and see just how Jaxon, who was born with only half a skull, is defying all odds and proving to the world that every single baby is worth loving, cherishing and fighting for.
His parents call him Jaxon Strong and with good reason. Jaxon was born with a rare condition called Microhydranencephaly, meaning parts of his brain and skull are missing. There is no known cause and no cure for Jaxon’s condition.
While doctors assumed that Jaxon would only survive for a few days, the cheeky little man celebrated his first birthday on 27 August, 2015.
And with this milestone comes an important reminder and message from his parents. Every child is unique and every child deserves a chance at life.
Brittany and Brandon Buell set up the Jaxon Strong Facebook page and Go Fund Me account to keep others informed about their son’s incredible journey. While there have been a few controversial comments along the way, the account has more than 200,000 supporters and with good reason.
The couple discovered that there was an “unknown issue” with their son at their 17 week ultrasound. Although they were given the option to abort Jaxon at 23 weeks, the couple decided against it.
“No doctor could tell us exactly what was wrong or what to expect, but we did make sure to ask if Jaxon was in pain or was suffering, and we asked if there were any added risks for Brittany during the pregnancy or potentially at time of delivery,” Buell writes. The answer to all of these questions was no.
The first year with Jaxon has been filled with plenty of ups and downs.
“He is a baby who is dealing with teething, he cries when he’s hungry, he hurts from gas pains, he throws up, he cries, he poops, he sleeps, he repeats,” Brittany explains.
And while there are constant health concerns and medical appointments, Jaxon continues to grow, to learn and to develop his little personality each and every day. He talks, he plays, he laughs.
“He is so normal in so many ways.”
However, behind closed doors, little Jaxon and his brave parents have a few obstacles to overcome. Jaxon will need a miracle long term and no one can tell the family just how long they have left with their little man. Jaxon must be fed through a feeding tube and suffers from multiple seizures every day.
Jaxon Strong’s story shows hope, strength, perseverance and, above all, the power of unconditional love.
“No matter who you are or what you believe in, it’s clear that Jaxon’s tiny footprints will have a lasting impression on this world, and that he has already touched and inspired more lives in one year than most of us ever will in our lifetime.”